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Read conversations, start a discussion, and connect with others about blood cancer.

I have Essential Thrombocythemia.

I have recently also been diagnosed with Pulmonary Hypertension. I will see a Cardiologist this week. I have read that 47% of...

JAK 2 mutation

does anyone else have this mutation...

MDS with Anemia

I don't know anyone who shares this blood cancer except for one person who wrote in to this group saying this is...

What age were you diagnosed?

What age were you diagnosed with a blood cancer?...

How long were you sick before you received a diagnosis?

I'm thankful that I had a family doctor who refused to give up on me. By the time the leukemia blast cells...

CML

I was diagnosed with CML in 2020. I don't know anyone with it. I have a wonderful oncologist who monitors my symptoms....

How do you describe your pain?

How do you describe your pain? What do you do to manage it? Is it better or worse than when you were...

Did you experience fatigue after receiving CAR T-Cell Therapy?

"My strength slowly returned at what felt like a snail’s pace. I remember still being so fatigued at my thirty-day appointment and...

LGL

does anyone have large granular leukocytic leukemia and if so what treatment was or is being done and what are the results?...

Handling Misdiagnosis

Have you met being misdiagnosed with doctors over time with your disease? How have you handled or better yet rebuilding trust with...

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